HAMBURG, N.Y. (WIVB) — Born in September 2024, Cameron Casaacci is the kid that Alyssa and Brad Casacci at all times wished. However inside hours of Cam’s beginning, their world was turned the other way up.
“They did an MRI on this 1-day-old baby and kind of confirmed the worst: He had a very large stroke on the left side of his brain. [Additional] seizure activity was secondary to that injury,” Alyssa instructed Nexstar’s WIVB.
The household was then transferred to Oishei Youngsters’s Hospital in Buffalo, New York, the place they spent the following 19 days holding out hope for a miracle to avoid wasting their child boy.
PREVIOUS COVERAGE: New York mother and father combating insurance coverage denial for child’s life-saving mind surgical procedure
“It’s a really hard pill to swallow when you realize you have the sickest kid in the NICU,” Alyssa mentioned. After boughts of needles and drugs, Cam continued to struggle. Then a neurosurgeon “recommended a very drastic surgery.”
“A hemispherectomy, the place principally, they go in they usually disconnect the left hemisphere of his mind from the precise [in order to stop the seizures],” Cam’s mom defined.
The household sought therapy with a advisable neurosurgeon in Pittsburgh and a date was set for the surgical procedure. As they ready for the process, nevertheless, their hopes and prayers got here crashing to a halt.
The insurance coverage firm, Impartial Well being by New York State Medicaid, denied the surgical procedure as a result of it was out of community and mentioned there have been medical doctors within the space that might carry out the surgical procedure. The household, nevertheless, was instructed no one in Western New York was certified.
“We talked to insurance coverage. They are saying, ‘Nicely, that is the sport it’s important to play with the denials,'” Brad said. “His life and his mind should not a sport.”
Alyssa and Brad have spent greater than a month pushing again on the insurance coverage.
“We appealed with the help of UPMC [University of Pittsburgh Medical Center] and their great staff, letters from our doctors here, our providers,” Alyssa defined. “They denied that, and then, as of last week, we just went forward trying to exhaust all avenues.”
Simply days after WIVB’s preliminary report, the choice to disclaim protection was reversed.
“A second of aid that we obtained what we wanted and we will transfer ahead and provides this little man the very best childhood and life that he deserves,” Brad Casacci instructed WIVB on Tuesday.
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In a press release, Impartial Well being mentioned this was an necessary case and that “they’ve been actively communicating with the State Department of Health,” including, “Medicaid members receive services from in-network providers; however, given the rare nature of the procedure requested, the department has granted us flexibility to approve the procedure at the facility requested without further appeal or delay.”
The surgical procedure is now scheduled for subsequent Wednesday, August 20, at UPMC Youngsters’s Hospital with Dr. Taylor In a position, a pediatric neurosurgeon who focuses on epilepsy surgical procedure.
“We trust him, and he wanted to build that relationship with us,” Brad mentioned. “But he showed that urgency, he knew Cam needed the surgery, just like we did, sooner rather than later.”
“We just can’t wait to move forward and just, you know, let his little brain do beautiful things,” Alyssa mentioned.
Because the Casaccis put together for what medical doctors say can be a six-hour surgical procedure, the household is asking for continued help and prayers as they transfer on to this subsequent chapter.
